My heart hurts

I feel such a deep sadness in my soul on a regular basis over Jack’s possible autism.  I carry around guilt that I somehow made it happen.  I worry, I obsess, I cry, I don’t eat, I grind my teeth.  I’ve been in a state of loneliness in a way.  I’ve tried to shut it out.  I’ve tried to shut down from my life in a way and escape.  I can feel myself hiding from it all.  I hide for a little while.  I shut it all out… then I’m more alone but nothing has changed.  Things are still the same.

Fighting back tears I’m going to be completely honest.

-When I ask Jack what he wants for Christmas and his reply is, “nothing,” my heart breaks.
-When he plays the same thing over and over again, never deviating from the play or adding to it…I feel anxious.
-When he has to cover his ears to say a simple hello to someone his own age– I beg for him to just “stop it” on the inside.
-Every time I make an excuse for him, telling others that he is “shy.” I feel guilty.
-I feel like… somehow, I am less than, because I am convinced I did this to him.
-I spend moments of each day thinking this can’t possibly be real.  I analyze every moment in the past 4 years.
-I feel immense guilt that I would ever feel let down by him or disappointed.  That I would hate autism so much when it could very likely be a major part of his life.
-What hurts the most is not being able to fix it for him.  I fix things, it is what I do.  I can’t fix this and it makes me feel like a failure.

I really needed to say those things.  Maybe saying them has changed your entire perception of me.  Maybe you think I’m a terrible mother and person.  I spend a lot of each day thinking the same thing.  I feel like it is important to say my truths though.  I feel like it is important to say that this is NOT easy, that I am SCARED and I am SAD and I am aching in several moments of every single day.  I am angry.  There were no signs of anything like this.  He was a typical baby.  I’m also mad because I was reassured time and time again by everyone that this was not autism.  His pediatrician felt like I was crazy for even thinking it.  Autism hurts.

Now that I’ve said these things you must know a few other things.

-My son is hilarious. He made his first pun at 2 years old.
-My son learned to tie is shoe at 4 years old and now goes around the classroom helping his peers tie their shoes.
-My son leaned over and whispered, “Good morning Claire” to his sister this morning and then kissed her on the lips.
-My son tells me often and out of nowhere that he loves me.
-My baby hugs me.
-My son is happy I am his mother and comforted in my arms.
-Every single day, despite the heartache that this possible diagnosis has brought, I feel SO blessed that I was chosen to be his mom.  I want him EXACTLY the way he is. (However, if I could take away some of his anxiety I would in a heartbeat.)

I have learned a multitude of things in the past 2 years.  I have grown, I have come to terms with a lot and I’ve realized that things rarely turn out the way you think or hope that they will.  I’m learning to go with the flow.

This will never be easy, but nothing worth something ever is.  He is everything, so the ups will feel much higher and the downs will feel heart wrenching…but he is worth it.  He is perfect.

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